She is still in very good spirits and nearly 72 hours later, 3 different antibiotics, and 2 blood transfusions our baby girl is looking much much better and is being weaned slowly off her intubation. Thousands, even Millions of prayers and strong faith have got us to this point. Without our Heavenly Father and angels guiding the doctors and giving Scarlet the strength our baby girl may not be here today fighting her battle. Shes not happy with her intubation tube, shes use to sucking on a binky and things when shes mad so hopefully that will encourage her to fight harder to get it out. Were so blessed, were still staying at Stevens Hope and even though we dont have a lot of money to our name were trying to give back as much as we can. Vins mom Kim applied for something called AeroCares through her organization and its where they give money to families in need that work for Aeropostale. We were accepted and the money recieved is in the process of going to Stevens Hope. This organization helps so many families, who are absolutely incredible and we are so blessed to be part of their Special Family. <3 Its hard not working and not having any money but were trying to find jobs currently and possibly finding a local news station to come do a story on Scarlet and Organ Donation. We want to help spread awareness the best we can and get these amazing childrens stories told, their voices cant be heard yet so its up to heart parents to speak up. My mind has been going a thousand different directions with all the Scares and Prayers weve had this past week but I want to give back in a big way. Not sure how yet, or even when but I pray that the Lord gives me the opportunity to spread the word and give back to all the amazing people in our lives. Still scatter brained Im not sure what else to mention, of course I can always answer any questions you guys may have so for now I will sign off saying once again, Thank You. For all the love and support you guys give, for the thousands of thoughts and prayers you send our way, they are much needed and felt. We have complete faith that our angel will make a full recovery and have all the energy to wait the long wait she still has. Scarlet is almost 2 months old, shes 7 lbs, 21 inches long, and the biggest love in the world. My pride and joy, my strength, she is my Scarlet Marie Griffith, Half hearted Angel who continues to fight the battle from leaving a piece of herself in Heaven. Here are some more pictures to enjoy before she took her journey this week. Finally getting her in outfits and seeing her little personality.<3 thank you all again.
Hypoplastic Left Heart Syndrome
Throughout these blogs you will see me refer to Scarlets congenital heart defect as HLHS. This stands for Hypoplastic Left Heart Syndrome, a child with this defect only has the right side of their heart. When Scarlet was born we were under the impression shed go through the standard three surgeries...At just 3 days old she underwent a procedure that showed her coronary arteries were not what they should be and IF the surgeries were successful she could have a heart attack at any point in time... which left us with Heart Transplant. At a week old she had a pulmonary Artery Banding to help preserve her life during the wait.. She also had a balloon septostomy at 2 1/2 months to help.. we almost lost her 4 times, and after waiting 3 1/2 months she got her second chance at life. September 26,2011 an angel entered our daughter and saved her life. Our daughters life will be treasured no matter the length of time she may grant us, though we hope for a entire lifetime. "Enjoy life today, yesterday is gone, and tomorrow may never come." If you'd like to know more about Scarlets condition please feel free to read more of the upcoming blogs.